“Relying on God has to begin all over again every day as if nothing had yet been done.”
C. S. Lewis (Collected Letters)
It’s funny how a single day can change everything.
I was sitting in the top of a football stadium along the river separating Ohio from Kentucky, the sun warming the still air all around us when I saw a new message on my phone.
And everything changed.
For eight months now, the anchor in in the harbor has been a “wait” word. Wait and see if the cancer grows back. Wait and see if it grows into other new, breathing lung places. Wait to even look with an ultrasound because these kind of cancers grow so slow. And these doctors who see the worst and the harshest…? Well, can you blame them if they don’t want to over-cut thin skin, over-treat weary souls, over-anything these precious littles? I certainly can’t.
But the scared places in my heart wanted to blame and scream to stop the wait and start the fight. The cancer is slow in other bodies, but cancers seem to like Chase’s body too much, and the last one grew fast like a wild fire in the wind.
Four to six whole months to even peek inside… the pictures and news would come right before Christmas and his tenth birthday. Four to six unchecked months for the cancer to go and do anything, anywhere. And of course, it might not go anywhere. But this is Chase we’re talking about and he tends to have the outlier story; the road less traveled journey.
But then, a message read against the sun’s glare on my phone at the top of a football stadium changed everything just a bit.
For, you see, sometimes doctors change their minds. They talk to each other and pour over the charts and histories and results like a holy grail of sorts, and then they turn to each other and question why they should stick to the idea of four to six months when Chase is a blink-of-the-eye kind of boy. And so, instead of waiting for cold weather and holidays, the message said we do it now, in just a few days at the peak of the pre-Fall warmth.
And yesterday, with a simple phone call, everything changed again.
Because it’s not just the scan that comes in a few days, dear ones. Sometimes doctors change their minds about treatment too. They chart and think and test and then they turn to each other and question the wisdom of leaving cancer to grow in Chase’s body where it grows too well despite official prognoses and data. And so, while treatment may not be easy for Chase, it is a precaution that has gone from a distant possibility to an imminent reality.
For the first time since October of 2013, our sweet boy will officially go back into treatment.
It’s silly and crazy, because we’ve known to expect this since we heard the words “It’s cancer” back in January. But it feels different now that it’s here, and it feels urgent in the speed of a changed decision. And I think at the end of the day, the best way to describe our hearts in this is ‘joyful grief’. We are so deeply thankful that the wait is over for now, and that the doctors looked to each other and came up with the answers that were heavy on our hearts. We did not have to fight them for these changes. They came to our conclusions on their own and that’s a blessing of the best kind when doctors have to be like family members on the regular. So there is joy in that oneness of mind, but there is grief too. Once again, we push into pain for the long term benefit and willingly subject our precious son to incredibly hard things for the sake of his future quality of life.
We have been told that we will hopefully know more by the end of next week. And it could all change again in a second. But until that time when the results are known, through that time of tests and procedures, and beyond – whatever may come – as long as breath remains – we cry out for grace and strength in the …
…moment by moment.
[All pictures are from this past weekend; fulfilling Chase’s dream to finally see his friend Robbie Gould play in real time. All our love and thanks to the Gould family for making this dream a reality for Chase.]
Oh Ellie, I don’t even know what to say to you. I was SO sure our guy would not have to go through this all again! or you and your family. I really do pray for all of you every day! He is just so precious, as all our children are, what we wouldn’t do to be able to take it all away from him! Love, hugs and prayers from us all.
May our Heavenly Father put his loving arms around your family and hold you with his strength. God Bless.
There are no words, but love and virtual hugs sent your way. – Jane and Clint
Dearest Ellie,
There are no words that I can say to make the pain feel any less real. I can however tell you that never take your eyes of the living and breathing Savior, who walks every step with us. Your writing and witness of the power of God is in it self the testimony of how faithful God has been and God will continue to be. As we journey down this road of life, we have great victories and great sorrows, but through it all God is still working, teaching, encouraging and leading us into His desired will for us.
We do not have the ability to see the next moment in time but trusting and leaning on God’s promises is nothing sort of His Grace. I know very well His Grace and how deep sorrow can feel, but God is still God and He will allow us to be perfected in Him if we allow Him His place in our lives. You have been faithful, so continue to be and continue to trust for you not what tomorrow will bring but walk with strength knowing that God has never left you nor forsaken you. Sending all our love Manette and Bob Kuhlman
My prayers are with you and your family. Sending HOPE for all.
I’m glad to hear that the doctors were able to come to your conclusions. I know that I would be reacting the same way as you. I don’t do anything the easy or “normal” way. It’s no right to look only at numbers. The doctors need to remember that it’s a person that they’re treating, not numbers. Sometimes they need to look at the person, symptoms and past history for a more reliable treatment plan. I’m so happy that they’ll be looking sooner rather than later. It might not be pleasant for Chase, but it’s the most sensible plan. I’ll be thinking of y’all.
I want to say that Chase is still such a blessing to me! I am at Wheaton now and don’t have instagram but would love to meet you all!