We are sitting in the surgery waiting room and I wanted to give a quick update on Chase’s procedure…
We got to clinic early this morning (where we meet with his neuro-oncology team) and were told that in discussing the anesthesia issue further, it would be best to put a new needle in the port before Chase went downstairs for his procedure. They know Chase and knew that his fear of a dressing change/new needle is nothing compared to an anesthesia mask.
I should note that he was able to be without a needle in his chest for close to an hour and he spent that time dominating the clinic floor, running back and forth in his gray camo pants and no shirt, proudly displaying his “no tubie” chest to any and all who would look at it.
In this moment, we are so thankful for a team who sincerely considers Chase’s best interests.
Because he had the needle placed, he was able to have the IV Versed (forgetting medicine) and as I walked alongside his bed to the OR doors, he said “It’s okay, Mom. You can go now. I’m going to take my nap.”
Moment by moment.
[picture: that first moment when the needle came out]
such a blessing to read this. was praying for you last night as I was up with Noah & will keep them coming. love to you all
Thanking God for that HUGE answered prayer. My heart was so heavy for you this morning when I read your post.
Always praying for you.
Precious moment Mom! What a “soldier” he is. Marching around with his chest showing how PROUD he is. Amazing the strength and how they can perk you up and make you feel, “if he can handle it I should be able to”.
Love, Jolene
Hi, I don’t know you except through the prayer chain i receive your updates on little Chase. i’m sorry for the circumstances you and your family are in–i can relate. However i’m not sure this is the right place to express my thoughts, seeing there is no email where i can reach you privately…so here is my question for you;
Are you facing the “fear” or are you” forcing a cure”?
I ask because i know what it’s like to have a child with an incurable disease, and no matter how many years i’ve sought treatments and did everything possible to find a cure for him, there isn’t one and he is going to die. And doctors can’t cure even if he happens to be the best specialist in his field.
Are we seeking other gods who would save our sons, and pretending to ourselves to rely on the great Physician? Are we so strong willed to hold/hang on to what we feel is ours, knowing these precious ones are on loan to us? We put them through intolerable torture and say, oh how brave they are, and what wonderful christian witnesses we make for enduring patiently while putting them through this horrendous cruelty. Maybe the true test is facing our faith–is it in the great Physician or in the world’s doctors? Are we in fear of losing our entrusted little ones to the receiving loving bosom of the Father or are we so determined to have the world’s doctors make the decision of saying when these precious ones are allowed to leave this earth?
It is really a test of our faith isn’t it? It’s not until we take ourselves out of the equation, entrust them totally into God the great healer’s hands–without the added torture–and enjoy every moment possible with them until God decides to call them home.
It’s amazing what fear causes us to do.
There is no fear in love; but perfect love casteth out fear: because fear hath torment. He that feareth is not made perfect in love. 1John4:18
I will continue to pray for wisdom for you and for joy for little Chase and family.