Of Things Bright, Sweet, And Clever

This is Donna.

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Donna had beautiful golden curls and a wide, infection smile.

Donna was named for her maternal grandmother who died of a brain tumor before she was born.

Donna was bright, sweet, and clever.

Donna was diagnosed with papillary meningioma on March 23, 2007.

And on Monday, October 19, 2009, as her parents slept by her side, Donna died.

Donna was four years old.

Four years like four percent – the amount of U.S. Federal funding dedicated to childhood cancer research.

Donna’s mom is a wonderful, colorful, gifted writer and for so many of us on the cancer journey, she quietly writes two words over and and over on our pictures and stories: Choosing Hope.  

So today, as writers and bloggers band together on social media for – #DonnaDay – we choose hope for this family and all of our families.

Because this is one of the very real ways we can “chase the cancer away”.

For more on the St. Baldrick’s fundraiser honoring Donna, or to donate, click here.

For more on Donna’s story, told by her mom, click here.

Choosing hope once again . . . moment by moment.

Speaking The Struggle

Good morning! I’m over on the St. Baldrick’s Foundation blog this morning, talking about Chase’s amazing meeting with Rep. Peter Roskam earlier this fall.  Join me to read what the US Congress heard about Chase!

Here, I’ll get you started… click on the link below for the full post:

“Over the years, there have been long days and trying times that I want to get up and shout, “This is so hard!” Times when I want to pull out the soapbox for what affects my family, and talk about the lack of funding for childhood cancer research.

Most days, I don’t shout our struggle because we all have something to shout. We all struggle.

Which makes it all the more precious when someone else steps in to shout it for you.

One September morning, I sat in a school gym. The whole family sat in metal folding chairs forming a small arc against the front wall, while hundreds of children and teachers sat on the floor facing us.

The principal stood to welcome everyone in her beautiful red shoes. As she spoke, there was a murmur of activity in the hall outside the gym, and the crowd gathered at the doorway parted for a single, quiet man…”

http://www.stbaldricks.org/blog/post/illinois-representative-peter-roskam-recognizes-ambassador-chase

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