Of Golf Carts, Big Smiles, And Being Amazing

These days in the news, so there’s so much heartbreak – so much about people who use their position of influence for evil instead of good.

I can’t change the whole, but I can give you a peak into that sad news not being the only news. Yeah, maybe it’s the sad kind that sells, but quietly, powerfully, all over the world, amazing people are silently doing incredible things.

So, this weekend, let me give you a small peak into something wonderful. And I hope it will bless you as it has blessed us.

Many hospital fundraisers are well publicized, but there are some that are quiet too. This last week, we spent 24 hours with the quiet and the powerful, and dear ones, how I wish you could see what I saw…

The Lurie patient families gathering with each other and foundation staff; hugging and talking like long lost friends — because trials knit strangers together by their souls even when they’ve never met.

Lurie families and staff gather with actor, Anthony Anderson
Chase hands out Cliff bars with Julie, a member of our Lurie staff family
Lurie patients and siblings in the photo booth

The three little neuro boys – who beat their odds and defied their statistics – running and tagging and giggling through a crowded ballroom full of VIPs.

The beautiful girl – thirteen long years in a wheelchair – who pushed up onto her braces, braced her courage and body against the podium, and told her story, shouting “Isn’t that amazing?” to a standing ovation.

Ellie and Chase

The leaders of companies, the heads of foundations, professional athletes and actors – one and all treating small children with big disabilities as if the children were the heroes whose autographs were sought and whose selfies were precious.

Selfie with Robbie Gould
Selfie with Kevin Butler

The men and women who hand beautiful, expensive golf clubs without a care into the hands of small children and teaching them how to tee up and tee off.

The looks on the players faces when asked how the game is going – the shrugs and smiles and “That’s not why we’re here today. Today is for the kids.”

Chase met Mr. Butler last year and couldn’t wait to see him again this year!

The absolutely huge center for a pro football team crossing clubs like swords and falling “dead” to the ground under Chase’s cry of “surrender or die!” – all because he’s a dad too and he gets that kids are kids no matter what.

The players who paused their game (time and again) to sign their golf balls and give the kids rides in their golf carts.

Chase gets driving lessons from former Cubs pitcher, Kerry Wood
Lurie’s Aaron Conn with all the patients and siblings
More driving with Kerry
Chase and Darcy practice driving with former Chicago Bears player, Kevin Butler

The mothers and fathers who gave up their own families in the middle of crazy, busy lives to fly to Chicago on behalf of a children’s hospital.

Chase and Charlie with Anthony Anderson

The winners who took their signed football prizes in hand and turning, bowed over bald and broken children and placed the prizes in the kids’ hands instead.

Chase with Mike DeMatteo, giver of his signed football

The silent money that bought four pieces of children’s art, framed like the greats, for thousands of dollars.

The dozens holding a sign for a boy who wasn’t there because he was on the table for his ninth brain surgery – his second in two weeks.

Kerry Wood and Darcy support Team Matthew

And dear ones, so much more. So much more! I have as many small story moments treasured in my heart as Chase has fist bumps, high fives, and “Hey, do you know you’re awesome?” questions.

Chase and Robbie take a minute to perfect their lounging skills

The few pictures I took have names to them so you can see and know what and who you’re seeing, but dear ones, there are no names in the stories because they, the famous, the amazing; they wouldn’t want you to know. That wasn’t why they gathered. So, you don’t need to know all the names behind the stories, but I do want you to see a bit of their hearts.

And these hearts? Well, they raised well over $800,000 for the hospital.

Robbie Gould with the Lurie kids and members of the Ace Foundation
Robbie speaking his heart

Quietly, powerfully, people are doing incredible things.

~MbM~

In Which Chase Goes Really Fast

13403937_1047233472022928_5310873142492364519_o
[Credit: Iron Gate Motor Condos]
I’m not a car person.

Yes, I have had a favorite car in my life, I can recognize an expensive one when I see it, and I did the popular momentary cringe over our first mini van before wholeheartedly embracing the extra space — but I’m not a car person.

Until last week, that is…

For last week I stood on a red carpet and watched line after line of shiny, beautiful, cars I could not identify pull to a stop and load children with cancer into their perfect interiors, revving their engines and taking off with their tiny, precious cargo screaming joyfully – many of whom barely cleared the windowsills to see their route.

[Credit: Iron Gate Motor Condos]
[Credit: Iron Gate Motor Condos]
And then the organizers were on their radios, talking excitedly that “they were about a minute out” as a line of nearly 30 beautiful cars snaked up the long drive, all with “Ultimate Road Rally” magnets affixed to their doors and many with “We Rally for Sami” on their windshields – an homage to a dear brother, violently gone far too soon.

[Credit: Iron Gate Motor Condos]
[Credit: Iron Gate Motor Condos]
The rally drivers then joined the other drivers, each taking one child into the passenger seat and the child, eagerly clutching a rally map, helped the drivers earn more points before returning to the drop off. It’s hard to describe the beauty of drivers and organizers setting aside walking devices, helping parents adjust children out of wheelchairs, and then as the children exited the cars, their smiles were huge, their arms were laden with gifts, and I saw softness, joy, and even tears in the eyes of these tough drivers with their breath-taking cars. And how I wish you could see what I saw.

[Credit: Iron Gate Motor Condos]
[Credit: Iron Gate Motor Condos]
But perhaps my favorite memory of that day was the two brothers in the shiny black…I want to say a Mustang, but like I told you, I’m not a car person…can we just leave it that it was shiny and black and absolutely gorgeous?... Anyway, the two brothers, took two of my darling boy brothers out for a spin, as as they returned, I could see the tops of Aid and Chase’s heads and hear their laughter and joy. No doors opened to exit the boys, but one of their escorts simply stuck his head out the window with a giant grin and said; “They want to go again.” And with that, the car leapt forward with a roar out of the drive and I could hear Aidan laughing and Chase screaming “Go faster! I feel like I’m going to throw up! This is AWESOME!!”

13403352_10153500169495583_3942820541731745782_o

And all those drivers? Well, besides giving my kids one of the best afternoons of their entire lives, they raised $30,000 for Cal’s Angels.

And me? Well, I’ll never see those beautiful cars the same way again. That day changed me a little. Now, even though I still can’t identify what I’m looking at on the outside, I see so much heart on the inside and it blesses me.

“I know Sami would have wanted us to do something special. We couldn’t save his life, but there were lots of kids’ and their families’ lives that we touched.” Omar Salaymeh, Marketing Consultant at Chicago Motor Cars, Founder of Ultimate Road Rally, and Sami’s dear brother

**With gratitude to Cal’s Angels, Omar Salaymeh, Ultimate Road Rally, Iron Gate Motor Condos, and all the amazing drivers and workers who made this wonderful day possible**