In the hours following Chase’s surgery, scans showed that there were some areas of fluid around his brains – pockets, if you will. I regularly flash back to those uncertain hours and the sick, tight feeling in my stomach as we waited and wondered if he would need to go back into surgery.
Those hours resolved in the same day with a second scan that showed no change and it was determined that the fluid could be watched and waited on as Chase moved forward in stable condition.
Chase -as we well know- continues in stable condition, but the January scans (when we received such good news) revealed that these pockets of fluid have changed: now, there is blood in them.
I won’t even begin to write on a technical level about things like “hematoma” that I don’t even completely understand, but I will reiterate this: Chase is stable. If there was an immediate or emergent quality to this issue, we would see marked changes in him.
Chase will, however, be having a repeat scan in a couple of weeks and will be meeting with his neurosurgeon to determine a plan of action. …a plan that I pray will in no way involve booking an operating room.
The wondering and the waiting. The watching anxiously and exchanging worried looks over his head any time he slurs a word or loses his balance. All of it tempts me to despair and curse the cancer…to throw up my hands and scream “This will never be done! This will never be better! There is no end to this awful disease!”
And yet…
In the middle of this past week, we learned that a little girl who shares our hospital lost her battle with cancer. Her name is Anna. She was 11. Somewhere, her family sits forever changed – doubtlessly reliving the awful moments when they were told that the chemo had done irreparable damage and the very hours were numbered.
I grieve for Anna’s family, yet I am truly thankful for her life’s reminder that I still hold a living and breathing child in my arms and that each second of life is a precious gift.
The day Anna died, I stood looking out the window over the bleak landscape and as I stood, snow began to fall. As I watched the flakes in the air, I was reminded that there is a sovereign God who crafted and knows each design of each flake that touches the earth and he knows Anna’s heart and Chase’s brain and all the whys and wherefores that I don’t and may never know or understand.
I want to tie this all together neatly… The blood pockets in a damaged brain, the chemo-ridden heart that stopped a too short life, the snow that fell and the insight with it. I don’t believe there is a neat or tidy way to wrap these hideous and beautiful things, but this …
“Oh, how great are God’s riches and wisdom and knowledge! How impossible it is for us to understand his decisions and his ways! For who can know the Lord’s thoughts? Who knows enough to give him advice? And who has given him so much that he needs to pay it back? For everything comes from him and exists by his power and is intended for his glory. All glory to him forever! Amen.” Romans 11:33-36 (New Living Translation)
Moment by moment.
I love this blog post, Ellie. No…no nice, neat answers. Just God. His wisdom. His love. His understanding. You’re living inside that precious, but oh so very messy, place called faith. Bless you for that. I love you.
We all stand there together, dearest Connie! Love you!!
Only God. Your updates are so very important to those of us on the outside, praying for all of you, so thank you. But more importantly, your faith is a powerful example to all of us on the outside…thank you; you’re a blessing.
Thank you, Kate. Amen. Only God.
Thank you for your update. Praying……your words are so powerful. Thank you.
Thank you, Anna! So encouraged.
Thank you for your update. I don’t know your family, nor do you know mine – perhaps a friend of a friend linked to your blog on Facebook? I don’t remember, but I have been praying for you, Chase, and your family for the past several months, and will continue to do so.
Thank you so much, Dorea!
First time I am reading this and so I do not know your family as well but I am a sister in Christ and am praying for you and Chase and your family. I appreciate the honesty and openness of your heart. Keep clinging to Him and rest in His care.
Thank you, Maggie!