From January 8, 2018 – 8:57 AM…
The separation never gets easier.
He stayed so chill, fought the needle and then breathed (after 27 minutes of struggle).
And I thought he was unconscious already when his brown eyes fluttered up again and he sighed “I love you so much and I’ll miss you, Mom.”
Is it possible to be totally brave and vulnerable at the same time?
Sleep sweet, my boy. 
❤️
From January 8, 2018 – 5:46 PM…
Joy comes in the morning, but sometimes it comes in the evening too…
This boy.
It was a long, exhausting day but there is GOOD NEWS.
Chase remains NED! NO EVIDENCE of DISEASE!!
The cavernomas grew again – those small spots they’ve been monitoring in the brain – but so far, nothing is hampering his day-to-day life, so even surgery gets to wait for a bit longer.
The bottom line? More things to watch and monitor, but none of those things go by the name “cancer“, and so we’ll take today as the great blessing that it is.
Moment by moment.