We received a call yesterday about the EEG results. In almost eight hours of monitoring, they weren’t able to capture a single seizure. This is a HUGE praise!
Despite this really great piece of news, Chase’s EEG is still “abnormal”. The person I spoke with said that some of that is to be expected as parts of Chase’s brain were removed in surgery – because of this, his brain will always read “abnormal” these types of tests. However, there may be an aspect of the results that cannot be attributed to previous brain trauma. This is the part that was unclear. We have been told that this will be something to discuss in further detail with the specialist at our meeting in about three weeks.
We are so thrilled that there were no seizures, but I spent a good part of yesterday afternoon just working through the word “abnormal“. As I’ve recently written, this concept of “normal, but not“, has been a difficult paradigm to optimize. Hearing the word “abnormal” yesterday afternoon just brought back all the questions and many of the frustrations.
We look forward with hope to this meeting in a few weeks and acknowledge that there is never a time that we’re not in desperate need of moment by moment grace.
And Chase is always and forever Chase – about once a day, he turns to us and says “Hey! Remember the stickers on my head? I did that the other day and I was so, so, so brave!”
~MbM~
Ellie,
There is nothing “abnormal” about that smile! there was nothing “abnormal” when I watched Chase wave his lil hand the entire parade. There was nothing abnormal watching & hearing him talk & laugh with his brother throughout the parade, while also making us laugh. There was not one “abnormal” word uttered from the mouth if that babe that didn’t light us all up to want to be clise to him. There was nothing “abnormal” about how he lit up when he saw his family on the parade. Most of all ” There was nothing “abnormal” when he gave me a hug & said “I Love You” at the end of the parade. He is brave and our Superhero! The real “abnormal” is the use of an adjective with no explanation.
We are so “HAPPY” to hear no seizures!!
love you all …. Bike Bald
Praising the Lord with you this morning. Thank you for the info and I don’t stop bringing your family to the Lord for His compassion, peace, strength and joy.
Love you, Aunt Jane
Horray, yea and endless thanks again, to an amazing God!!!!