Today was our second day of post-chemo follow up. Chase has made a lot of progress and today turned into a very big day when his neuro-oncologist suggested that Chase may have “weaned” far enough off of his IV nutrition (down to 10 hours) and may actually be eating enough to stop using the IV bag altogether.
So today, for the very first time ever, Chase was “deaccessed” (the needle and dressing were removed from the port in his chest) while in the hospital and he walked away a free man! He has not been without visible “hardware” in either his chest, arm, or hand since August of 2012 (other than a very brief 24 hours in July when he got to go swimming). This is a big step and he is very excited! Without the bag, he won’t have a needle taped to his chest and he will be able to swim, or take a bath, or go places without a “crash kit” on hand. Please pray for Chase as his body transitions back to sustaining itself without assistance. He will continue to have weekly labs taken to monitor his progress for at least the first few weeks. And so, we move forward…
Moment by moment.
Dear little one, seeing those scars I reflect on the scars of Christ and the scars I saw on my on little one’s body ~ Held in His scarred Hands ~ our little ones and our Hearts ~ what a glorious and grand God! Be blessed dear ones as we celebrate Emmanuel this season ~ God with us and never so present as in a hospital room, in a wakeful night, in fears and tears, so Loving, so aware of every moment ~ Mary