The Irony Of The Disrespected Genius

Less than five hours left in this year of 2017…

This year has seen us through many, many things and all along the way we’ve prayed for the strength to choose joy. To that end -the joy part, or in this case, the hysterical laugh-until-you-cry part- I’ve compiled a series of status updates from my Facebook page; all of which were posted in 2017.

I chronicle these things (and have done so for some years) because life is too short and childhood is even shorter and there are too many parenting moments when you’re faced with the choice of either laughing or melting into a puddle of tears — so, as much as possible, we choose to laugh.

Many of the scenarios include personal hashtags: from the most common – #lifewithboys, to the most funny [playing off of our secret parenting fear that our children won’t get college scholarships] #notscholarshipmaterial, to my desperate need for mental awareness before dealing with early morning conundrums #givemecoffeeorgivemedeath – and this year, there are a couple guest appearances from #TheQuoteableEdPoole and Bob Ewoldt with some #MarriageGoals!

We’ve asked you to walk many hard things with us, so, for a brief moment, as we close 2017, enjoy our “normal“…

  1. “Hey Mom, is there a list beyond the ‘Naughty List‘? Like, ‘The Atomic Naughty List‘? We were just wondering. Oh, and also, the elliptical is broken.”
  2. You might be a mom of boys if your first thought on seeing a small child running through the room with underwear on his head is not “Why are you wearing underwear on your head?”, but rather, “Are they clean?”, and “They shouldn’t cover your eyes while you’re running!” 
  3. Reasoning And Logic With Boys — Actual: “You can’t go outside to play until your room is clean.” Philosophical interpretation: “Open the windows and pitch everything out so we have a clean room AND have to go outside to pick things up.” #LifeWithBoys #GoDownWithTheShip
  4. Just helped a child find his backpack. It was on his back. #SchoolForTheGifted #NotScholarshipMaterial
  5. Boy: [PUNCH] Me: “Use your words!” Boy: [sweetly] Hello…! [PUNCH] #FiveKnuckleDiplomacy #LifeWithBoys
  6. Well, well, looks like your #mondaymotivation arrived a day early. You’re welcome. #TheQuoteableEdPoole
  7. “Mom, it’s not really hard to drive the car in the dark. You know what’s really hard? FARTING IN THE DARK…I just did it right now.”
  8. ‪”But what do you mean that we don’t have any dynamite for me to use? Are you serious?” #LifeWithBoys
  9. Because really, why WOULDN’T you put your toothbrush on the hood of the car? #LifeWithBoys #NotScholarshipMaterial 
  10. “Just because I’m quiet doesn’t mean I’m getting into trouble. Also, I definitely have nothing in my pocket.” #LifeWithBoys #SmoothCriminal
  11. But we were only dusting for fingerprints…” #LifeWithBoys
  12. Overheard: [sound of a running tackle] “GIMME BACK MY PANTS, STINK BRAIN!” #LifeWithBoys
  13. Today the 3rd grader wrote his student council campaign speech on RESPONSIBILITY …on the bus on the way to school. #ParentOfTheYear
  14. In the future, I’d prefer it if you wore pants, shorts, or really anything on the lower half of your body when you come to the dinner table.” #LifeWithBoys
  15. When the answer to “But why did you pin him to the ground?” is “Because a good captain always goes down with his ship”, it’s hard to argue. #HonorAmongThieves #LifeWithBoys #BandOfBrothers
      1. Don’t pee in the bushes.
      2. Don’t pee on the carpet.
      3. Keep your hands to yourself.
      4. Less talking, more working.
      5. Don’t pee on your feet.
      6. Brush your teeth.
      7. Don’t punch each other in the [male anatomy].
      8. Don’t take your clothes off in public.
      9. Don’t take your shoes off in public.
      10. Take your hands out of your pants.
      11. Stop bothering your sister.
      12. Stop punching each other.
  16. Well, I did not know that it was your very new lipstick when I drew all over the toilet. It was only a dollar, right?” #LifeWithBoys 
  17. The problem with Sing (the movie) as that you catch the five-year-old belting out “I DID IT MMYYYYY WWAAAAAYY!” …from the other side of the BATHROOM DOOR. #LifeWithBoys #CleanUpInAisleThree
  18. Mom, did you see my gnarly dive? By the way, just so you know, ‘gnarly‘ is a really, really old fashioned way to say ‘awesome’.
  19. Well, Mom, if you think about it, the pig mom in Sing had like, twenty-five kids and you only have, um, four, so, um, really, it could be a lot worse. So, if you think about it, you really don’t have that much work to do at all. But I am hungry now. Is it time to eat?” – Child who does not want to see his next birthday
  20. “But I’ve searched EVERYWHERE and my backpack is NOWHERE in the WHOLE house!” Says the boy as he is walking down the stairs and trips over his backpack. #LifeWithBoys #PoeticJustice
  21. When the answer to the question is: “Because we are staging a fake old fashioned bar fight“, you know you live in a testosterone-rich environment. #LifeWithBoys
  22. When one decides relieving his bladder is better done in the middle of the front yard than behind a closed bathroom door. Help me, Jesus… #IntoTheWind
  23. “So Mom, just to clarify, did you tell us we can’t jump off the bunk bed ladder or off the dresser? I’m just wondering…because. Yeah, just because.”#NotScholarshipMaterial #SmoothCriminal
  24. “Mom, I’m sorry I didn’t make it to dinner earlier. I was stuck in a box and there was a little stuck-related delay.”#LifeWithBoys #NotScholarshipMaterial
  25. “Hey! Did you know women have a protein in their brains that make them talk more? This is why women are way more chatty than men. There’s science for the way you are.” Bob Ewoldt, on this, his last day of life #MarriageGoals
  26. “It’s not fair that you’re making a big deal about him! He’s not the only one who got hurt, Mom. I hurt my knuckles when I punched him too!”#LifeWithBoys #PeeAndSympathy
  27. Clearly, nobody’s an “enploye” of a cleaning service, “no adult” would survive, and the “no dogs” thing must be because a rabid pack of wild beasts is already in residence. #SchoolForTheGifted #LifeWithBoys 
  28. Bedtime diversion tactic #43782: “I couldn’t hear you because I am really just having some bad hearing right now.” #PointsForSelfAwareness
  29. “Hey Mom! Can I have a lighter? I’m making a fire, but don’t worry. I put the pile of sticks together so the fire will be controlled…and I put them in the deck…oh, wait…” #NotScholarshipMaterial #CrashAndBurn #LifeWithBoys
  30. “Not a ‘court-hammer-thingy’! It’s called a gavel and I don’t care what you say… you don’t need one while you’re lying in bed trying to go to sleep.” #ThingsIActuallyJustSaid #LifeWithBoys
  31. “If you play aggressive sports with a guy, they say it’s a sign that you like him…or, that you have brothers and aren’t afraid of guys…but mostly just that you like him.” – The Gospel According to 5th Grade #SaveMe
  32. “Mom! Come quick! I wocked Aidan in the gawage and I need you to wet him out! But wet me start wunning away first.” – The Child formerly known as Karsten Ewoldt #LifeWithBoys
  33. Even ninjas have to be kind to their sisters.” – Life lessons with little boys
  34. “Well, um, I was about to say that I *am* really responsible, but then I remembered that thing about the matches. Oops.” #LifeWithBoys
  35. “I really don’t care that you didn’t lick it first. You are not allowed to stick Tootsie Rolls to the walls – science experiment notwithstanding.” #QuestionableEvolution #LifeWithBoys
  36. Child One (singing): “Be kind to one another…”, Child Two: “No! You don’t know how to sing it! It’s ‘Be kind to your other mother’!” #EPICfail #notscholarshipmaterial
  37. “Well, we weren’t really drawing on each other as much as we were just throwing the markers without caps. And also, we weren’t wearing any shirts, so the markers just sort of got on our skin. Accidentally.”#LifeWithBoys #GiveMeCoffeeOrGiveMeDeath
  38. The words you can never quite UN-hear: “Mom, the boys have saline flushes and are using your milk foamer to remove Chemo Duck’s stuffing.” #RIPChemoDuck #LifeWithBoys #AnesthesiaSTAT
  39. [early morning tears] “Mom, wake up! I’m crying because Darcy doesn’t respect my genius.” #GIVEMECOFFEEORGIVEMEDEATH
  40. Darcy: “Wow, Aid washing his hands? That’s like, SO ironic.” Me: “How so?” Darcy: “I don’t really know, but it seems like maybe it could be. But wait, what does ‘ironic’ mean again?” #LifeWithTweens #JesusTakeTheWheel
  41. One of the scariest nice weather phrases in the English language: “Um, we’re just digging, Mom. Um, don’t worry. Everything’s okay.” #LifeWithBoys
  42. Me: “Son, that was unkind and out of line. How should you respond to your brother?” Child [faces sibling with a resigned sigh]: “Um… BACON??“#LifeWithBoys #BaconFixesEverything
  43. Me: “Seriously, son? Do I look like I was born yesterday?” Son: “Well, not really. You actually look like you were born about a thousand years ago.” #LivingOnTheEdge #PointsForHonesty
  44. “Hey, Mom, wanna see if I can slingshot your coffee mug while it’s still in your hand?” – When Spring Break Becomes Hazardous To Your Health #SpringBroken #LifeWithBoys 
  45. “But I kicked him in the head because I loved him!” #LifeWithBoys #BandOfBrothers
  46. [holds up the Poison Control add in the paper]: “So, wait… if you want to poison someone and you need help, you call them??” #NotScholarshipMaterial
  47. “Well, Mom, it’s YOUR basement, so YOU should have to clean it up…NOT us.”– Anonymous Child with a DEATH WISH #WorldWarBasement
  48. “WHAT?! You want us to clean up the WHOLE basement?? What are we?? Your SLAVES?!” #WorldWarBasement
  49. Karsten: “Mom, what does ‘you ruined my life’ mean?” Me: “It’s when literally every single thing goes wrong, your life is completely scarred, and you can blame it one single person or event. Why?” Karsten: “Oh, I see. Well, because you kind of ruined my life with that breakfast.”
  50. This afternoon’s coffee — Brought to you by the mischievous bald who locked all the house doors leaving his brother to wet his pants all over the front porch. More laundry. My favorite. #LifeWithBoys
  51. “Well, actually, I should get something special because I was very, very on my good behavior until I threw the dish at Aidan’s head.” #BoyLogic #LifeWithBoys #SerenityNOW
  52. “I can smell fear. But actually, since you just brushed your teeth, it’s mint fear.” – Karsten #TheHygienicTerrorist #LifeWithBoys
  53. “Seriously, how many times have I told you not to lock your little brother in the coat closet?!” #LifeWithBoys
  54. [whine] “But WHY do I have to wear a shirt to school?” #GIVEMECOFFEEORGIVEMEDEATH
  55. “So, Mom, I’m thinking of becoming a professional singer. How do I get an agent?” #GIVEMECOFFEEORGIVEMEDEATH
  56. “Don’t worry about that sound, Mom. It was just me dumping out all the Legos. Everything is okay.” #LifeWithBoys
  57. No. I know you’re sad, but you can’t wear your swim goggles to school.” #GIVEMECOFFEEORGIVEMEDEATH
  58. [whining tears] “I just walked into a door…again.” #LifeWithBoys
  59. “Well, we are already done with breakfast, so we are pants-ing each other.” #LifeWithBoys #GIVEMECOFFEEORGIVEMEDEATH
  60. “If a boy looks at you and smiles, like, literally looks at you, or if he talk to you even a little, it means he probably likes you.” – The Gospel According To Fifth Grade
  61. 6:40AM [crash] “Mom! I just threw the shoe box with tissues* at a bug, but now I need my light saber! I will rescue you. [crash] Don’t worry!” #GIVEMECOFFEEORGIVEMEDEATH [*Chase’s words for the tissue box]
  62. And then Chase purchased himself FOUR KAZOOS. The End. …of life as we know it. #GIVEMECOFFEEORGIVEMEDEATH
  63. “It was just your imagination, Mom. We aren’t really getting in trouble. Don’t worry.” #LifeWithBoys #ItsAnIllusionMichael
  64. “Mom, I just want you to know that I’m the fastest gun flinger in the West.” #NotScholarshipMaterial #CoverYourHead
  65. “Well, I hit him, but it was an accident…or, maybe it was an acciDON’T.” #LifeWithBoys
  66. “Shut up! I’m trying to make things right with you, chump!” #SensitivityTraining #ConflictResolution
  67. 6:30AM – “Mom, I’m just waking you up because we dumped all the Legos and now the family room looks like the inside of a trash can.” #GIVEMECOFFEEORGIVEMEDEATH
  68. “Um, I’m just wondering, um, where you can buy parachutes? …um, for no reason.” #LifeWithBoys
  69. “Can sisters sign their brothers up for the Air Force?” #LifeWithKids
  70. Mom, if I explain the biosphere to you, can I have a dollar?” #KnowledgeIsMoney
  71. When the answer to “Has anyone seen my car keys?” is “Yeah, I got angry and put them in the mail box.
  72. “I’M NOT GOING TO TELL YOU AGAIN… PUT DOWN THE SWORD AND GO TO BED!” #LifeWithBoys #SerenityNOW
  73. 6:30AM [shoving a paper in my face] “Mom, I used the standard algorithm on this equation. The answer is 1.1, right?”
  74. But I was trying to turn off the light switch by shooting it with my Nerf bullet…” – Boy-Related Crisis Explanation #3,872
  75. Signs you might need more coffee in your life… “Mom, can Charlie [the stuffed dog] talk to you about the geosphere?
  76. And now it’s time for another round of “Unsolicited Opinions With Chase”… “Mom, you can be annoying sometimes when you speak French.”
  77. Is playing a harmonica at 6:30 on a Saturday morning justifiable grounds for selling a child on Ebay? Asking for a friend… #LifeWithBoys
  78. Mom, it took me FOREVER to clean!”…”You cleaned?!”…”Well…NO. But if I did, it would take me FOREVER.
  79. Mom, I’m worried about dinner…it smells like one of Karsten’s farts with a pinch of salt.” #NewRecipeFTW #LifeWithBoys
  80. “Les, take a picture of me with this lollipop so I can put it on Facebook and caption it: ‘two dum-dums’.” #FatherKnowsBest #Goals 
  81. [after a series of visits to the ER] “You’re bald!” … “Oh yeah, well your forehead is glued together!” #MedicalBurns #HeadCases #NotScholarshipMaterial
  82. [whining] “You want me to eat zucchini for dinner? Can I call my lawyer??” #LifeWithBoys
  83. “For the love of sanity, don’t lick your sister’s arm!” #LifeWithBoys
  84. Blah, blah, blah, anecdotal insanity ending in “…so, I pee’d in the bottle!!” #CensoredLifeWithBoys #BleachIsMyBFF
  85. When all your “save electricity” lectures finally take root and you find the crockpot dinner had been off for hours to “help”. #SerenityNOW
  86. [The Bald being dragged out of the sermon] “BORING! BORING! BORING!” #LifeWithBoys

 

There are so many crazy things that happen during the year and I often don’t get time to post on social media, but wow, these kids make me laugh, so here are a few never-before-seen quotes that come to mind…

**THE BONUS ROUND**

  1. “Mom, do you think cats can speak English?” #NotScholarshipMaterial
  2. “No nudity in the Christmas pictures, please.” #LifeWithBoys
  3. “If I told you that I had an eye patch, would I still be in trouble?” #SmoothCriminal
  4. When the answer to “Can anyone tell me why Karsten’s glasses are outside in the hostas?” is “Well, I got really mad and I threw them out the bedroom window.” #BandOfBrothers #LifeWithBoys
  5. “Mom, do we have any duct tape? We’re building a trap for Darcy.” #SiblingLove

 

In addition, anyone who has ever had brothers or sons knows that there is an entire genre of quotes, hilarity and insanity that is not always fit for public consumption, but on the occasion of the end of 2017 and the start of 2018, I give you a special, somewhat edited, select few from…

**THE CENSORED LIFE WITH BOYS**

  1. “Mom, we’re just playing a game. It’s where we see who can hit each other in the [anatomy] the hardest.” #LifeWithBoys
  2. “Mom, I kind of might have forgotten to open the lid when I pee’d in the bathroom just now.” #LifeWithBoys
  3. “Son, I’m not going to tell you again. I don’t care if your [anatomy] itches…get your fork out of your pants.” #LifeWithBoys
  4. [referencing a near miss with a zipper fly] “And that’s why you shouldn’t go commando.” #LifeWithBoys

 

Goodnight and goodbye, dear old 2017…

Moment by moment.

“The lines have fallen for me in pleasant places; indeed, I have a beautiful inheritance.” Psalm 16:6

 

 

 

 

Raising Encouragers In An Atypical Life

ENCOURAGEMENT: /noun/ the action of giving someone support, confidence, or hope.

Giving support to others not only requires mental and emotional energy, but also and often a shade of vulnerability. I have to open myself up to help someone else. And this aspect of living in community, well, it can get complicated when I’m heartsick and weary. How can I possibly care for someone else when I feel in shreds…when my family feels shredded and resourceless? I suppose I expect to care and serve others out of my own excess of peace or joy. So how do I give joy when I don’t feel it in my life…when there is seemingly no excess? And how on earth do I teach my kids joy in the atypical?

I worry for the other three all the time: how will Chase’s cancer diagnosis harm them? How has all of this defined them or broken them? …perhaps even in ways we can’t see or won’t know until they’re adults themselves? (2:00AM thoughts that push the ‘panic’ button)

Will they struggle with what to believe? …with who and how to love? …with their life purpose? And how many of these struggles will they be able to pinpoint the birth of in a sibling’s terminal illness, subsequent struggles, and the too-often mentally, emotionally, or physically absent parents who should have been at their sides.

I want to fix all of these things before I even confirm their brokenness. I want to pre-empt all the pain and cushion it. And I acknowledge in my heart and even as I see with my own eyes that it often isn’t the big moment kicking in the teeth of their precious hearts, but the little one. If L-O-V-E is truly T-I-M-E, then it really is a moment by moment fight for the good to win through all the pain and craziness.

And here’s what I’ve found: there is so much I can’t take away from them, but there are things I can give them – almost like tools to build or weapons to war. Because life may be atypical, but it can still be incredible – it may not always be “good”, but it can still be right.

“Share each other’s burdens, and in this way obey the law of Christ.” Galations 6:2 NLT

Share.

Obey.

We were created for this. Despite the vulnerability and pain, we survive as we share the ups and downs of life with each other.

What does this concept look like in a feet-on-the-ground, eyes-open-wide way ? And what does it especially look like when the burden is a life shadowed by complicated illness and the burden carriers are little children?

FaceTime in the hospital

Notice Others: A huge part of developing encouragers is fostering awareness of those around you. Go around the dinner table and have each person say something they like or appreciate about the person to their left. This makes us have to consciously consider the good in others, and as we see this, we often see their hard things to comfort too.

Seek To Relate: “Do to others as you would like them to do to you. (Luke 6:31 NLT) This goes one step deeper than just seeing the person next to you. Actually try and put yourself into someone else’s shoes. Try to feel what they feel. This can be complex and even offensive in painful moments, but painfully easy and wonderful in life’s joy moments. And perhaps, there will be a fantastic and interesting discussion as you tie what your kids know and feel to what someone else close to them might know and feel.

Be Authentic: There are few things that can’t be worked through by talking to each other honestly and openly. If we genuinely don’t know what to say, I believe it’s okay to express that inept or powerless feeling and talk it through. This is often the most vulnerable moment, but also the most rewarding for in opening my heart, I invite the other person to open their heart as well.

Celebrate Victories:  Some victories will look like winning and others will be simply refusing to let the darkness, weariness, stress, or anger in. To feel the pull of pain, to deny it, and to choose joy or hope instead is a staggering victory and should be celebrated as such. (These moments aren’t always deep and nuanced. For some people in our family, this is as simple as forcing themselves out of bed the morning after a long day in the hospital.)

Just Stop: Sometimes I just have to stop and sit. Gather up my precious babies onto my lap, or under my arm, kiss their heads and tell them I love them. We cover ourselves with a blanket and just snuggle for a bit. Then, I breathe deep and say it aloud: “You guys, let’s just take a minute.” Because nothing tears at the heart and mind like constant, unabated stress and sometimes, miraculously, the petty fights and little hurts resolve themselves as we breathe deeply and remember love, not hate.

Just Go: Yes, sometimes we need to stop and breathe. However, other times, we need to get up and go. Hang the schedule and the clean house or the project that’s still not done… just go for a walk together, go to the park together. Or, even better, go check in on a neighbor, take popsicles to someone who just had surgery, take coffee to Daddy at work… These small things, especially the things that allow us to serve others are a constant, tangible reminder that we were not created to function in a void and that our personal pain, stress and hardships do not comprise the only story in the world. Breaking down the boundaries, meshing with others, reaching out – all of it – is like water on the tender growth of sensitivity.

Orchestra concert cheerleader

And dear ones, I hate writing list points because it feels like accomplishments checked off and won. The truth is: we are broken. We fail at these ALL the time, scratching each others’ eyes out with our words and our selfish hearts just as often as we hug and bind with joy. But I’m writing these things down all the same because I need to remember, and maybe, just maybe, you’ll find something encouraging here too. You are loved.

Moment by moment.

“All praise to God, the Father of our Lord Jesus Christ. God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us.” 2 Corinthians 1:4

 

Do You Want To Talk About It?

We sat curled up on the bed – just her and me – the only two girls in this whole house full of boys.

“Do you want to talk about it?”

Darcy’s nearly ten-year-old voice was calm as she described almost dispassionately what it was like to discover her two-year-old brother having a seizure when she was only six. And then, her tone changed and suddenly, like a full-fledged adult, a hand came up to her face as her eyes welled up. “I’m so sorry…I don’t know what happened. Sometimes I can’t talk about this without crying…”

Oh, how I know that feeling! Even when Chase is in the next room – living, breathing, and probably getting into trouble, the flashbacks can still take my breath away in an ordinary conversation. 

Darcy and I ended up talking for a long time and crying some too, and it lead to these words… Because sometimes I forget how hard this is for her, Aidan, and Karsten.

Aidan, Chase, and Darcy [photo credit: Jan Terry]
Aidan, Chase, and Darcy
[photo credit: Jan Terry]

For the “cancer” siblings: especially the littles…

Set the tone for understanding — To a child, sickness (of any kind) is contagious. I didn’t know this until we talked, but that early Tuesday morning when Chase was taken to the ER and Darcy and Aidan cowered in the shadows of their room, Darcy kept watch over two places. She told me she’d go to the window and check to see if the paramedics had taken us out yet, and then she’d go back and check on Aidan to see if he was seizing too. She stood in the dark of the room and thought it could be all of them…all of us. It would be some time before she and Aidan fully understood that cancer could not be caught from or given to another person. 

Presence can mean peace — They say nothing is worse than whatever you imagine and I think it may be true. We couldn’t always bring siblings to the hospital because Chase was in isolation so frequently, and our gut was to keep the very worst of diagnosis and treatment from them on some level, yet, Darcy told me that the times she felt most at peace were when she could either come to the hospital and see Chase personally, or when we’d FaceTime from our room in the oncology floor to Grammie’s house. She could see the IV cords and watch him vomit, but she could also see that he was alive and that was what brought her the most joy – just seeing he lived. 

Set the paradigm — This one is kind of interesting to process because Bob and I actually didn’t have the luxury of telling our kids Chase had cancer. We were completely separated from them for a full week and their grandparents had to tell them before they found out from a third-party as loving friends surrounded them in those first days.  But that being acknowledged, we’ve found (through trial and a lot of error) that explanations whenever possible can be very helpful. Whether it’s why Chase was getting gifts and special attention or why mom and dad seem so distracted, tired, or weepy, sometimes an age-appropriate conversation provided better understanding than pretending it wasn’t happening, brushing questions aside, or simply evening out special gifts among siblings. Our family motto has become: “There’s nothing we can’t talk about”. Hard, but good. 

Help direct emotion — Chase’s siblings cannot live through all that they’ve seen and not be significantly changed. Whether it’s memories of me laying on a gurney clutching their motionless brother to my chest or listening to kids making fun of a post-treatment Chase behind his back, there is a lot of fear, hurt and anger.  A lot. We spend a significant amount of time talking through how those feelings of fear or angry protection are a completely normal human reaction to what they’ve experienced, but it’s what they do with those feelings that will define them. We pray often that these things would make them and not break them, and that they would be strengthened in compassion and prepared to defend the weak because of what they’ve lived. And then we try and find ways to apply it to the every day.

Be prepared for deep feelings — This one surprised me and still does. Somehow, I expect that a lot of what we’ve gone through went over their heads. Not so – at all. They may not understand the word “terminal”, but they can sense it. There have been times that Darcy wanted to sit and talk and then others, like when she’s at school, where she hasn’t wanted to talk about Chase’s story at all, but she’s very aware of it and who she is in it. She explained that the kids don’t understand and the teachers all want to hug her and while she appreciates the love, both of those things make her feel very vulnerable. She doesn’t want to cry at school, but sometimes she needs to come home and just have a good cry over it.

Look for seasons of rest — Having a sibling with special cancer or neurological needs is as full-time for them as it is for us as parents. Whether it’s making a concession over parental attention, curtailed family activities, partaking in extra “cancer activities”, or interacting with a neurologically, emotionally, sometimes physically demanding playmate 24/7, I sometimes don’t even realize (in my own exhaustion) how tiring living with a cancer sibling is for my other kids. But Darcy could explain it to me; sharing how sometimes she can’t handle Chase anymore, but other times, she misses him and is slowly learning to listen to him when he demands her attention because he says things like “I’m a survivor, Dars!” (his pet name for her). And like adults, the siblings can have a layer of guilt over annoyance during a stressed family dynamic – especially when it’s towards a family member with a terminal illness. The guilt alone is exhausting.

There’s just no wrapping these things up. They’re messy and the dynamics continue to unfold as the kids change and grow and Chase lives on in his complications and joy. Some days are beautiful and could be used as parenting seminar illustrations and others feel like a complete wreck in which we need a bomb shelter rather than a house, but spending time with Darcy on this subject reminded me once again how good it is to just sit, talk, and pray together. We are not alone.

Moment by moment.

“Teach us to realize the brevity of life, so that we may grow in wisdom.” Psalm 90:12

The princess and the super hero
The princess and the super hero

This Is Love

Seven years ago, right around this same time, I stood, holding Bob’s hand, Aidan kicking in my stomach, and stared at the stern, older gentleman behind the desk and dais in front of us.

His position in the room was raised to help indicate his position in the building – for he was a judge…the judge, to us. Our papers lay in front of him as he weighed the final decision in the case, and then his words came, directed to the husband at my side.
“This adoption is done now. It’s final. And you… [he waved the gavel in Bob’s general direction] I have words for you. You didn’t have to do this, but you did it anyway and I want you to know that you’re a man of exemplary character.” And then, turning to me, he made sure I had heard the words that Bob has jokingly said should be framed ever since – “You know that, don’t you?”


Bob had taken the daughter born into my arms alone and made her the apple of his eye and his firstborn with a knit beauty that surpasses even blood and DNA. And now, seven years later, it’s so strange to write those words because it’s as if he has always been her father – in fact, I believe he was destined to be that person for her.


And forever, there’s this living, breathing picture of adoption – one person to another saying…

“I don’t care where you came from or what you bring with you, but I LOVE YOU, and what’s more, I want you to be with me forever and I’m giving you my name.”

“For everything comes from Him and exists by His power and is intended for His glory. All glory to him forever! Amen.” Romans 11:36

Moment by moment.

Bob and Darcy - September 2008
Bob and Darcy – September 2008

Chase’s Story [VIDEO]

Have you ever seen this video of Chase?

If not, I highly recommend it.  And even if so, feel free to watch it again…  We have been so blessed to partner with the St. Baldrick’s Foundation this year and are continually thankful for the platform they give us to share Chase’s story with so many.

-MbM-

[Our deepest gratitude to the incomparable Matthew Lackey for his mad, crazy video skills.  Also, a huge thank you to both Jane Hoppen and Kristen Thies for all they did to put together the finished product and the time spent filming it.]