Crabby Day is coming to a close…and we survived!! We have high hopes that tomorrow will be even better.
Today was an exciting and encouraging day. We were able to move out of the PICU and 2-3 hours of continuous EEG monitoring showed NO subclinical seizures!
The swelling is …amazing. I’ve never seen anything like it, but the doctors assure us that he looks great. At this time, his vitals and reflexes are stellar. The boy had something large enough to throw out the first pitch at Wrigley removed from his head, and they’ve assured me that within the next few days, he’ll be up and managing his pain with Tylenol.
If the amazing human body didn’t impress you before, I hope it does now – Fearfully and wonderfully indeed. (Psalm 139)
I’ve been thinking through the lyrics to a favorite song a lot recently. Today was incredibly encouraging and tomorrow may not be, but I think that if I could embody where I mentally and emotionally desire to be, I would live these words:
Whatever my God ordains is right
In His love I am abiding
I will be still in all He does
And follow where He is guiding
He is my God, though dark my road
He holds me that I shall not fall
And so to Him I leave it all
Whatever my God ordains is right
He never will deceive me
He leads me by the proper path
I know He will not leave me
I take content, what He has sent
His hand can turn my griefs away
And patiently I wait His day
Whatever my God ordains is right
Here shall my stand be taken
Though sorrow, or need, or death be mine
Yet I am not forsaken
My Father’s care circles me there
He holds me that I shall not fall
And so to Him I leave it all
Whatever my God ordains is right
Though now this cup in drinking
Bitter it seems to my faint heart
I take it all unshrinking
My God is true, each morn anew
Sweet comfort yet shall fill my heart
And pain and sorrow shall depart
© 2007 Sovereign Grace Praise (BMI)
Sweet boy, and strong mama. I hope you guys are getting some sleep in! I know the rest of the kids are well cared for as you’re spending so much time at the hospital.
I’ve shed plenty of tears the last few days as I pray for you, and as I keep asking people to pray with me, they end up in tears too. You are being lifted up, even when you can’t feel it.
I was there, in the hospital bed, recovering from brain surgery five years ago. I have always thought it must have been so much more difficult for my parents to stand by and watch than it was for me to go through it. God is good and very near in these difficult moments. Praying for you, and getting teary every time a read an update.
I don’t know your family personally –I just saw your story on an old friend’s fb page (Jennifer Schwartz). I just wanted to let you know that I am praying for your son and your family. I am a mom to 3 girls (ages 3, 6 & 10) and I have often wondered how I would handle things if God decided to take us through a trial like what you are facing now. I hope I would handle it with the grace and trust you are showing in your blogs –what a testimony to the sustaining power of God. The Lord has put you on my heart and I’ll continue to follow your posts and pray for you all.